Wednesday, September 2, 2009

Children's Hospital EEG

Most of you know we're at Children's Hospital in Boston for this long awaited monitoring for seizures. The plan is to monitor him for 2 days and 2 nights and be discharged Thursday morning when we'll drive to Provincetown for some much needed R&R. Our secret hope is that they'll have enough data by this afternoon to discharge us this evening so that we can sleep in a normal bed (at Auntie Robin's) and get some normal sleep. Last night was pretty horrendous. River slept well from 8 to midnight, then woke up pretty upset, likely because he has 25 electrodes glued to his head. After some motrin and tylenol he finally settled only to wake an hour later wide awake and ready to play (babbling, squirming, etc.). Julia and I took turns in the bed with him, mostly being kicked while we tried to shoosh him back to sleep. So we're all hanging out in our comfiest clothes, trying to catch up on sleep with some occasional bad TV and blog updating.

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